E. Apondo, A. Züger, A. Bruns, K. Mehlis, C. Schickhardt, and E. Winkler, “Establishing Adaptive Governance in NFDI Consortia:: Lessons Learned from Deliberative Forums with Patients on their Role in the Governance of the German Human Genome-Phenome Archive (GHGA)”, Proc Conf Res Data Infrastr, vol. 1, Sep. 2023.