NFDI4Health Local Data Hubs for Finding and Accessing Health Data

Making Distributed Data Accessible Through a SEEK-Based Platform

Authors

DOI:

https://doi.org/10.52825/cordi.v1i.375

Keywords:

Life Sciences, Local Data Hub, FAIRDOM, SEEK, FAIR data, Enabling RDM, Data Sharing

Abstract

To support federated data structuring and sharing for sensitive health data from clinical trial, epidemiological and public health studies in the context of the German National Research Data Infrastructure for Personal Health Data (NFDI4Health), we have developed Local Data Hubs (LDHs) based on the FAIRDOM-SEEK platform. Those LDHs connect to the German Central Health Study Hub (CSH) to make the health data searchable and findable. This decentralised approach supports researchers to make health studies with their data FAIR (Findable, Accessible, Interoperable and Reusable), and at the same time fully preserves data protection for sensitive data.

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References

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Published

2023-09-07

How to Cite

Meineke, F., Golebiewski, M., Hu, X., Kirsten, T., Löbe, M., Klammt, S., … Müller, W. (2023). NFDI4Health Local Data Hubs for Finding and Accessing Health Data: Making Distributed Data Accessible Through a SEEK-Based Platform. Proceedings of the Conference on Research Data Infrastructure , 1. https://doi.org/10.52825/cordi.v1i.375

Conference Proceedings Volume

Vol. 1 (2023): 1st Conference on Research Data Infrastructure (CoRDI) - Connecting Communities

Section

Enabling RDM

License

Copyright (c) 2023 Frank Meineke, Martin Golebiewski, Xiaoming Hu, Toralf Kirsten, Matthias Löbe, Sebastian Klammt, Ulrich Sax, Wolfgang Müller

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

Received 2023-04-26
Accepted 2023-06-29
Published 2023-09-07

Funding data